As yet untitled

I wonder sometimes about how I came to be so lucky; B is a wonderful husband (unsung hero) and of course The Kids are amazing. I've been reflecting on the past ten years and so much has happened; so many times things could have broken down. Before we got married I gave B a free pass [...]

My two cents – Part 2

Following on from Part 1 here's what I've learned: Your children, your parenting rules: Just because you have carers helping you does not mean you aren't the parent.  I know many carers like to do things their way - be firm.  Carers are there to help us and are supposed to be respectful of the way we [...]

My two cents – Part 1

So I've been watching the interviews at the Happily Family Parenting Conference. Lots of speakers. Lots of good questions and guidance.  Nothing about disabled parents so far. The advice provided is for everyone and it is very good advice.  Great advice.  I feel really reassured that it all lines up with my instinctive parenting style but there is [...]

Lupus & Me

Lupus has taken its toll on me and my biggest fear is the effect on my brain.  I can feel the cognitive loss- it frustrates and scares me that I now need twice as long to understand simple things.  When I try to explain this loss to my doctors I usually get a look like I [...]

Epiphany

I had an epiphany this morning. Lying in bed completely flat and in that semi-awake state where you're awake but clinging to that last bit of sleep I realised that I was resting all wrong. I know it sounds ridiculous but for those of us with fatigue issues rest becomes a science.  For example, lying [...]