Forgotten? Maybe not.

There is no guidance available for disabled parents; we fall through all the cracks.  It's as though disabled people are supposed to live alone their whole lives and not have children. Try getting through an airport with wheelchair assistance - there are no allowances for having children with you.  One wheelchair assistant actually said [of my [...]

I definitely do not have the answers!

Children assume parents have all the answers and know what we're doing when in truth we're stumbling along in the dark winging it.  We have no idea!  Having a baby exit your body or your spouse's does not prepare you for the psychological minefield that is to come. There is so much preparation for labour [...]

Jelly-bath

I wrote about M's eczema a last week and a friend brought a Polish home remedy [that her grandmother gave her] for us to try. I have to admit I was sceptical when I saw the bag of potato starch but I listened to her explanation and agreed to try it. Nothing to lose and everything to [...]

Quiet

M's eczema is out of control.  Completely out of control.   He had a doctor's appointment a couple of days ago and the doctor gave him a script for antibiotics. To be honest I didn't expect that; there was no clear sign of infection and I thought a course of Betnovate would sort it out -  it always has [...]

How do you know?

How do you know what the right thing to do is? M has eczema and allergies and he really, really hates using his medicine. When he was younger it was simply routine to apply them twice daily but he's nine years old now and since he was seven he has been resisting- a lot. He's [...]

Here I Am

I've been thinking about starting this blog for a while and [after spending what felt like hours trying to come up with a blog name that wasn't already taken] I'm finally here writing the first post. The kids are keen though I'm wondering if they really know what blogging involves-time will tell. I have systemic [...]