My two cents – Part 2

Following on from Part 1 here's what I've learned: Your children, your parenting rules: Just because you have carers helping you does not mean you aren't the parent.  I know many carers like to do things their way - be firm.  Carers are there to help us and are supposed to be respectful of the way we… Continue reading My two cents – Part 2

My two cents – Part 1

So I've been watching the interviews at the Happily Family Parenting Conference. Lots of speakers. Lots of good questions and guidance.  Nothing about disabled parents so far. The advice provided is for everyone and it is very good advice.  Great advice.  I feel really reassured that it all lines up with my instinctive parenting style but there is… Continue reading My two cents – Part 1

Lupus & Me

Lupus has taken its toll on me and my biggest fear is the effect on my brain.  I can feel the cognitive loss- it frustrates and scares me that I now need twice as long to understand simple things.  When I try to explain this loss to my doctors I usually get a look like I… Continue reading Lupus & Me