Priorities

I've always put The Kids first.  I used all my energy for them and, although it wasn't a lot, I did as much as I could with them.  That sounds honourable but actually that left nothing for B.  Or myself. Or anyone else. When The Kids were babies/toddlers/very young children I think they needed that attention and… Continue reading Priorities

My two cents – Part 1

So I've been watching the interviews at the Happily Family Parenting Conference. Lots of speakers. Lots of good questions and guidance.  Nothing about disabled parents so far. The advice provided is for everyone and it is very good advice.  Great advice.  I feel really reassured that it all lines up with my instinctive parenting style but there is… Continue reading My two cents – Part 1

Lupus & Me

Lupus has taken its toll on me and my biggest fear is the effect on my brain.  I can feel the cognitive loss- it frustrates and scares me that I now need twice as long to understand simple things.  When I try to explain this loss to my doctors I usually get a look like I… Continue reading Lupus & Me