Days gone by…

There's a certain feeling when the doorbell rings and it's the kids from down the street calling for my kids to come out and play. It brings a warm nostalgia and I can't help but smile. The Kids were feeling cooped up in the flat (we were previously in a townhouse with a garden and garage) and there isn't really much space [...]

The right call?

After a busy couple of days I desperately needed to rest today. I understand this, B understands this and The Kids understand this. Here's the thing, understanding is not the same as accepting. You need to bear with me for this post. My little Princess likes to get what she wants (who doesn't?!) and she wanted to [...]

Changing perspectives

The Kids are quite mature for their age so I sometimes forget how young they are (7 & 9) until they remind me - loudly. Having a parent with a chronic illness is scary for a child.  To be honest it is scary for adults so we can only imagine how amplified a child's fear [...]


Ever get the feeling that everyone around you is surging ahead and you're left in their wake?  Disability is a tricky thing; the world is not as accommodating as people think and that realisation hits hard when you're the one on the outside looking in. When my children were old enough for school I was excited for them [...]

‘Yes’ or ‘No’?

I just read an article on the appropriateness of 'age-appropriate' rulings. I like the article; it has the right balance of common sense and practicality and is easy to understand. As a disabled parent it is not so straightforward as being able to get up and get the ketchup. (You've got to read the article.) I [...]

Food for Thought

I'm very lucky that I have a brother-in-law who enjoys cooking and is a good cook (they're not the same thing!) who has agreed to help me with preparing meals. Each week I send him the recipes we would like to have and he sources, prepares and brings them over. This week we have traditional [...]

* not for disabled parents

I just read an article about how being organised is good for us and why  it is important to teach our kids how to organise their lives.  The article went on to give some very handy tips on things parents can do to help their kids learn to be organised.  And it was irrelevant to disabled [...]

How do you know?

How do you know what the right thing to do is? M has eczema and allergies and he really, really hates using his medicine. When he was younger it was simply routine to apply them twice daily but he's nine years old now and since he was seven he has been resisting- a lot. He's [...]


After a lovely chat with a friend this afternoon I decided to finally get to one of the FutureLearn courses I'd signed up for-Mindfulness for Wellbeing and Peak Performance. Mindfulness is something that has interested me for some time now and I've been trying to practice meditation as well but I have no frame of [...]

Here I Am

I've been thinking about starting this blog for a while and [after spending what felt like hours trying to come up with a blog name that wasn't already taken] I'm finally here writing the first post. The kids are keen though I'm wondering if they really know what blogging involves-time will tell. I have systemic [...]