Priorities

I've always put The Kids first.  I used all my energy for them and, although it wasn't a lot, I did as much as I could with them.  That sounds honourable but actually that left nothing for B.  Or myself. Or anyone else. When The Kids were babies/toddlers/very young children I think they needed that attention and [...]

As yet untitled

I wonder sometimes about how I came to be so lucky; B is a wonderful husband (unsung hero) and of course The Kids are amazing. I've been reflecting on the past ten years and so much has happened; so many times things could have broken down. Before we got married I gave B a free pass [...]

My two cents – Part 2

Following on from Part 1 here's what I've learned: Your children, your parenting rules: Just because you have carers helping you does not mean you aren't the parent.  I know many carers like to do things their way - be firm.  Carers are there to help us and are supposed to be respectful of the way we [...]

Lupus & Me

Lupus has taken its toll on me and my biggest fear is the effect on my brain.  I can feel the cognitive loss- it frustrates and scares me that I now need twice as long to understand simple things.  When I try to explain this loss to my doctors I usually get a look like I [...]

Epiphany

I had an epiphany this morning. Lying in bed completely flat and in that semi-awake state where you're awake but clinging to that last bit of sleep I realised that I was resting all wrong. I know it sounds ridiculous but for those of us with fatigue issues rest becomes a science.  For example, lying [...]

How do you know?

I have been worrying a lot about The Kids recently.... am I doing the right thing with the home education?  Am I providing a suitable education? Are they getting out and about enough?  Am I becoming a Permissive Parent? Am I leading them down the wrong path? How am I supposed to know? A few months ago [...]

I definitely do not have the answers!

Children assume parents have all the answers and know what we're doing when in truth we're stumbling along in the dark winging it.  We have no idea!  Having a baby exit your body or your spouse's does not prepare you for the psychological minefield that is to come. There is so much preparation for labour [...]

Education?

I used to be one of these 'trust the system' people believing that all the people entrusted to provide things like care, support and education had the experience, knowledge and desire to do the right thing.  As I came to need the system I realised that it is all a façade- there is no 'one [...]

International Women’s Day

Last night M and I were having dinner in my bedroom (I'm stuck at the moment) and I mentioned that it is International Women's Day; he asked if there is an International Men's Day and, if there is, when is it. "Every other day is International Men's Day" I got a confused look so went on to [...]

Glue trap

It is strange feeling to be so stuck- no matter how hard I try to escape it's pointless; there is no escape.  The harder I try the more tired I become and the worse the pain becomes until I am so exhausted that I just want to lie down and die just so the pain will stop. Before [...]