Lupus & Me

Lupus has taken its toll on me and my biggest fear is the effect on my brain.  I can feel the cognitive loss- it frustrates and scares me that I now need twice as long to understand simple things.  When I try to explain this loss to my doctors I usually get a look like I… Continue reading Lupus & Me

Epiphany

I had an epiphany this morning. Lying in bed completely flat and in that semi-awake state where you're awake but clinging to that last bit of sleep I realised that I was resting all wrong. I know it sounds ridiculous but for those of us with fatigue issues rest becomes a science.  For example, lying… Continue reading Epiphany

I definitely do not have the answers!

Children assume parents have all the answers and know what we're doing when in truth we're stumbling along in the dark winging it.  We have no idea!  Having a baby exit your body or your spouse's does not prepare you for the psychological minefield that is to come. There is so much preparation for labour… Continue reading I definitely do not have the answers!